Continuing our conversation with warrior, Tracy Marie. Tracy was born with a very rare, progressive life-long disease called Morquio Type A Syndrome. The syndrome causes cellular damage due to a missing enzyme. Even with all her health challenges and being misdiagnosed until 2017, Tracy forges ahead as a singer, songwriter, producer, and sound engineer who has recorded and produced numerous albums and travelled around the country performing with jazz legends like Stanley Jordan or the legendary drummer, Buddy Miles. Tracy knows firsthand the downfalls in implementing the criteria in the Americans with Disability Act and has taken tremendous strides to fight for herself and others with disabilities and rare conditions by advocating for ADA coordinators and by volunteering at her local government as co-chair of the ADA Transition Plan Task Force and at her local hospital as co-chair of the MetroHealth Patient Family Advisory Committee. As of 2021, Tracy has also been working with RAMPD, Recording Artists and Music Professionals with Disabilities, to make the music industry more accessible and to continue her advocacy work on a national level. In Part Two, tune in as Tracy dives into the challenges in getting her city ADA compliant and more about her important advocacy work. Tracy hopes to raise awareness on existing ADA compliancy issues and helps to share the steps we can all take to address them. To learn more about Tracy Marie, go to her website at https://tracymarie.com and go to https://archive.ada.gov/pcatoolkit/chap2toolkit.htm to find the ADA Best Practices Tool Kit for State and Local Governments. This step-by-step kit can help you begin the process of advocating for ADA compliancy in your area.
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