S1E27: Perseverance when Living with Chronic Conditions

Meet warrior, Jenny Jones. Jenny believes persistence is key to living with all the aspects of her two rare, chronic conditions called Familial Adenomatous Polyposis and Short Bowel Syndrome. Diagnosed with FAP as a child, she underwent a total colectomy at age nine. Complications led to six additional surgeries and an eighth surgery to remove her gall bladder. With encouragement from a community FAP page, Jenny started a blog in 2012 called Life’s a Polyp and began openly sharing all aspects of living with her rare conditions. The blog lead her to start a YouTube vlog, write a children’s book called Life’s a Polyp with Zeke and Katie and become an important advocate for her disease. Tune in as Jenny explains how perseverance helped her find the best medical care, be proud of her scars and find her purpose in life. To learn more about Jenny or to support The National Organization for Rare Disorders Familial Adenomatous Polyposis Research Fund, go to her website at https://www.lifesapolyp.com.

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